Friday, February 24, 2012

It's a Flare

Well Dr Jonnala called and we discussed my symptoms and sure enough it's a Flare......ugh...back on Prednisone....it will take care of the pain and replace it with an all consuming hunger and no sleep but I will gladly trade at this time...Still trying to cope with and understand this thing called Lupus.......leaving for Florida as soon as I get my meds, finish packing and drop Marley off at Ashley's Pet Center for her Doggy Camp.

"But He said to me, 'My grace is sufficient for you, for my power is made perfect in weakness.'"
2 Cor. 12:9

Thursday, February 23, 2012

Is this a flare?

Is this a flare? The last few days my joints have been really hurting. It would be so easy to just give in to the pain....but I have to work...I have to keep going....I worked half a day today...I am taking all my meds everyday which includes without ceasing morning and night tromadal which is a pain pill.... I take plaquenil which is for my Lupus symptoms and at night I take muscle relaxer called flexiril as well as a sleep aid ( the name escapes me) and another plaquenil and a tromadal. So......I have to wonder how I would feel if I was taking nothing......but I guess that is not important...it's that I am taking it and I am still hurting........I am not so sure my Kidney Infection is gone either so maybe that is what set this off....


Today I am hurting from my neck to my shoulders, my hips and my knees...last night sitting in a Bible Study was really hard because I couldn't stretch my legs out and they were cramped. By the time I got home I just laid on the couch...the cold leather felt so good to my aching body...I could not get up from the couch...I never ate dinner and when I finally just gave in to tears my hubby helped me up so I could go to bed.....ugh!!!!!!! I am waiting on a return call from my rheumotologist because I am worried about this continuing to get worsen.. We have a 6-7 hour car ride tomorrow to go see my mother in law who is very sick with lung cancer. Makes me feel so ridiculous to complain when she is so sick....

Lamentations3:22-23
Because of the Lords great love we are not consumed, for His compassions nevr fail. 
They are new every morning;  Great is Thy faithfulness.

Friday, February 17, 2012

Kidney Infection

So apparently it's a Kidney Infection... Rick is on his way to pick up the antibiotics and the Cranberry Juice. I'm taking this as good news at this point and I am sooooo glad it's Friday night!!!


Waiting on a call and hoping for the best

Well the test results are in… Blood work was all good.  But I have white cells in my urine which is not good.  It appears I have a bladder infection with the lower back pain and the other symptoms I am not surprised I just hope it is a simple infection and not Lupus deciding to attack my bladder… It does that so I am told………..with no notice………….. so I am a little disturbed. Waiting on a call from my Dr. who was out yesterday when the nurse called to tell me… Hoping an antibiotic will do the trick….to be continued….


P.S.  Decided against the sleep study.  Rick and I are just sure I don't have sleep apnea and we are going to concentrate on the issues at hand :) 
Brothers, I do not consider myself yet to have taken hold of it. But one thing I do: Forgetting what is behind and straining toward what is ahead I press on toward the goal to win the prize for which God has called me heavenward in Christ Jesus. Phil. 3:13-14

Tuesday, February 7, 2012

2nd check up. 4 months since diagnoses...

......Had my 2nd checkup with my rheumotologist. Good news my hair has stopped falling out. This means the Plaqunil is working. She did more blood work. Results in a week. Biggest complaint continued knee pain. Sometimes it's one or the other or both. Doesn't last long. It is a pain in the evenings or staying in one spot for a long period of time. Then getting up..its not easy. She did not change any of my meds. I am on tromadal (pain meds) all day and at night which is a slight concern to me..not to her..I have to wonder how I would feel without them....Still not feeling rested in the mornings. My arms still go to sleep at night but doesn't seem to be as bad. I can wear arm brace and that helps some at night only. Also if i keep my arms and wrist straight it helps. Neurologist determined I have carpal tunnel which evidently goes right along with Lupus.... When I come home from work, I fall asleep everyday whether I want to or not. Dr is wanting to do a sleep study..... Not thinking I am resting at night...duh...but wants to figure out why...not sure I want to do that but she is......to be continued......